Every day my little girl can dance is a good day.
Actemra that will occur on Saturday and the lack of understanding in general of Arthritis. A has very few days when she feel like it is all too much, but tonight is one of those for her. She burst into tears, yelled at a couple of her siblings, and was tossing thing around her room. As a parent these are the things you do NOT want to see your child do as a general rule. When you have a great kiddo like A though... moments like these are acceptable. She obviously needed to apologize to her siblings. Home should be a safe place to vent right? Tonight, she said, "Im not sure if I wanna dance anymore" my hear sinks... This has been her love her whole life. Yes, I taught her to love it by starting her so young... She talks about being on the highschool dance team... I dont know how much of a reality it is... But what ever she chooses to do, I will back her 100% because that is what good mommy's and daddy's do. You love and support your child no matter what is going on in their life.
Tonight when she gets home, we will snuggle for a bit... away from any windows... because what 13 1/2 year old wants to be seen snuggling their mom right? Tomorrow, she may take a "mental health day" to deal with the up coming stress of her first Actemra infusion, and she will be my sweet girl. The girl who no matter what kind of pain she is in will, laugh, joke, listen to One Direction, tell her friends she hates her moms music, and belt it out in the car... and be the amazing person i have blessed enough to be the mother to!