Tuesday, November 18, 2014

Kristie Wright has invited you to join shopkick

Hi Juvenile,

I really like shopkick. You should join me. It's a really slick app that shows you all the best items at stores nearby, like Target, Best Buy, Costco, Anthro, Old Navy, you name it. They also give you points ("kicks") just for walking into these stores - it's really pretty awesome. Then you get free gift cards with the points at Target, Starbucks, Old Navy, Best Buy etc, or even movie tickets or coach handbags.

So because it's you, here are 50 points to get started, just for fun. Download: https://app.shopkick.com/wr2/rectangle34345?medium_type=1&user_id=14422830802&invitee_id=odiesgirl1.ajjuvenilearthritis%40blogger.com

See you on shopkick,
Kristie Wright

You are receiving an invitation e-mail. Unsubscribe: https://app.shopkick.com/shopkick/v1/user/show_email_unsubscribe?email_addr=odiesgirl1.ajjuvenilearthritis%40blogger.com
This e-mail was intended for Juvenile (odiesgirl1.ajjuvenilearthritis@blogger.com).
Shopkick is located at 999 Main St., 2nd Floor, Redwood City, CA 94063.


Kristie Wright has invited you to join shopkick

Hi Juvenile,

I really like shopkick. You should join me. It's a really slick app that shows you all the best items at stores nearby, like Target, Best Buy, Costco, Anthro, Old Navy, you name it. They also give you points ("kicks") just for walking into these stores - it's really pretty awesome. Then you get free gift cards with the points at Target, Starbucks, Old Navy, Best Buy etc, or even movie tickets or coach handbags.

So because it's you, here are 50 points to get started, just for fun. Download: https://app.shopkick.com/wr2/rectangle34345?medium_type=1&user_id=14422830802&invitee_id=odiesgirl1.ajjuvenilearthritis%40blogger.com

See you on shopkick,
Kristie Wright

You are receiving an invitation e-mail. Unsubscribe: https://app.shopkick.com/shopkick/v1/user/show_email_unsubscribe?email_addr=odiesgirl1.ajjuvenilearthritis%40blogger.com
This e-mail was intended for Juvenile (odiesgirl1.ajjuvenilearthritis@blogger.com).
Shopkick is located at 999 Main St., 2nd Floor, Redwood City, CA 94063.


Sunday, March 16, 2014

Kristie Wright wants to help you smile more on Happier :)

Happier
Hi there,
Just wanted to shoot you a quick reminder that Kristie Wright invited you to join Happier.
Accept invitation

Happier combines a fun and social gratitude journal with a positive, no-snark community. Join Happier to help you focus on the good stuff in your life, share happy moments with friends, and get a boost of awesome any time you need one.

What Happier users say:
"A delightful antidote to the relentlessly ironic snark of other social sites. And it does actually make you start noticing more of what makes you happier as you go through your day."
~~ Elibates
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Happier, Inc. 319 A Street Ste 5F Boston, MA 02210

Tuesday, March 11, 2014

Kristie Wright sent you an invitation to Happier

Happier
profile-photo Kristie Wright has invited you to join Happier!
Accept invitation

Happier is a beautiful way to collect and share happy moments you find in everyday life. Brighten up someone's day by smiling at their happy moments and get ideas for what to do to be happier!
Want to stop getting emails like this? Click here to unsubscribe.
Happier, Inc. 319 A Street Ste 5F Boston, MA 02210
P.S. Happier stickers!


Monday, March 10, 2014

Kristie Wright sent you an invitation to Happier

Happier
profile-photo Kristie Wright has invited you to join Happier!
Accept invitation

Happier is a beautiful way to collect and share happy moments you find in everyday life. Brighten up someone's day by smiling at their happy moments and get ideas for what to do to be happier!
Want to stop getting emails like this? Click here to unsubscribe.
Happier, Inc. 319 A Street Ste 5F Boston, MA 02210
P.S. Happier stickers!


Saturday, June 1, 2013

JIA and Dance

When you have a child, you have dreams.  Every parent does.  Your dreams, may or may not match your child's, as they grow, but to a certain extent, you help shape those dreams.

When my little girl was born, I hated pink.  I put her in yellow, purple and aqua, as frequently as possible.  AND...  pink.  Pink was her favorite color.  In many ways, I think that was my fault.

The day my little girl was born was traumatic, she was delivered via emergency c-section for a Placental Abruption.  When I saw her several hours after our failed Spinal, that resulted in general anesthesia.  When I held her for the first time...  I thought...  here is my dancer...  my future ballerina.  I could think only of pink ballet slippers.  Thus...  her never ending obsession with pink!

When she was 3 years old, she got her first pair of ballet slippers and tap shoes. Miss Brenda's Dance Studio  I remember how adorable she looked in them.  She was perfect!  She had the energy and stamina to keep up and make others smile and wonder where all that energy came from!

When she was 5, we moved and it took a year or so to find a new studio.  We did though.  Kennedy School of Dance.  She loves, and has since she started, her dance teachers.  They are fantastic!

She has loved both places.  Both, she has learned so much.  The last couple of years have been very interesting in regards to her dance.  As she has juggled  Anti-inflammatories, pain relievers,DMARDS, Biologicals, and Corticosteroids.  This May, she had her dance recital, along with Blue Angels tryouts. They are a wonderful dance team.  She has been part of the StraightUp dance team and truly enjoyed it.     These were (are) her dreams.  Dreams that SHE had (has)  until now.

This year was NOT her best year performing.  I (as her mom)  sat in the audience watching her and her younger sister perform all night.  So many beautiful dancers.  Routine after routine I watched her...  as the night progressed, she started limping off the stage.  My heart sank...  and broke for her, all at the same time.  This girl who had so much potential and hope at the beginning of the dance year, limping off the stage less than two weeks after joint injections in her knees.   She cried when she got home.  I cried with her.  She is hoping to dance again in the fall...  but at this point, I truly feel like her JIA is winning.  She keeps fighting.  She is one tough cookie.  She is my hero.  With her pain, I dont know that I could do what she does.  I pray every day for a cure.

Tuesday, May 7, 2013

Letter to Editor of Idaho Press Tribune

Long time no blog...  everything is pretty much the same and I really need to update, but as of today, I decided to write because of an article in our local newspaper the Idaho Press Tribune.  I decided to write a letter to the Editor.  Here is the letter, I hope no one finds it offensive.  It is not meant to be at all.

Have a great day...  A&J's Mom

Dear Editor,

I was happy and sad all at the same time when I opened the paper this morning.  I loved seeing an article on arthritis, since May is National Arthritis Awareness month, along with 15 other observances.  I was however disheartened to see it right next to a giant pink ribbon for breast cancer awareness, which is usually addressed in October.  It had some very helpful information though.

When I read the article written by Dr. Shevlin, I thought there were so many WONDERFUL aspects to it.  There was one area in particular that was missing.  Juvenile Idiopathic Arthritis (JIA).  There are currently 300,000 children in the United States, that have the autoimmune form of arthritis, that in adults is called RA (Rheumatoid Arthritis).  Very few people know that children can have arthritis, unless it affects their family in some way, whether it be a relative or a child of their own. 

Did you know that Idaho is one of 11 states that does NOT have a Pediatric Rheumatologist? There are 6 states, that are underserved.  We, here in Idaho, do have adult rheumatologist who will treat children, but the treatment is different and more aggressive for children than it is adults.
Did you know that the same drug to treat breast cancer is used in many patients with RA, and JIA.  This same medication is used to treat some forms of Leukemia.  The difference is that RA and JIA can go into remission, but it is always there, lurking, waiting to resurface.  Many of the medications used to treat kids with JIA, have black box warnings, and have not been approved to treat children, so parents have to choose,whether to treat, or not treat our children for this crippling disease.   Not only does it destroy the joints, but it causes, along with medication, organ failure and blindness.  When people think of achy joints, they don't think of the awfulness that is actually JIA.  It does kill, blind and cripple children every single year. 

There are currently less than 250 pediatric Rheumatologist nation wide, Which means that every single Pediatric Rheumatologist would have to see approximately 1,200 patients, every 3 months, there would be no room for emergency visit.  (see the following link from the Arthritis Foundation) 


Here are the states with NO pediatric Rheumy's  along with the number of patients that need to be seen
Alaska- 800 Idaho- 1,500 Montana- 900 Wyoming- 500 North Dakota, 600
Nevada- 2,300 South Dakota- 800 Oklahoma- 3,500 West Virginia- 1,600
New Hampshire- 1,200 Maine- 1,100

As the numbers show there are approximately 15,000 pediatric patients NOT being served by a Pediatric Rheumatologist.    Now, lets look at the underserved, these are the states that have only one pediatric rheumatologist.
Vermont- 600 Arkansas- 2,700 Louisiana- 4,800 Mississippi- 3,100 Nebraska- 1,800
New Mexico- 2,000
With all of the previous information in mind, that more than 300,000 children have JIA, and there are only roughly 250 Pediatric Rheumatologists in the entire United States, that leaves approximately 30,000 patients being under served.  Keeping in mind that earlier, it was decided that a Pediatric Rheumatologist would have to see 1,200 patients,  by having zero pediatric rheumatologist, leaves nearly 15,000 patients without treatment or having to drive to other states for treatment.  In the six states that have only one Pediatric Rheumatologist, it leaves those doctors ALL six of them seeing 15,000 patients which is roughly 2,500 patients per doctor, not including children newly diagnosed.  This leaves the other 244 Pediatric Rheumatologist with roughly 270,000 and one doctor to see 1,100 patients still!

Please consider writing an article on this, or publish this information.  I am the mom of five, two of my children have JIA, we drive to Salt Lake City every four weeks to see our Pediatric Rheumatologist.  It is a 6 hour drive.  We go because of the lack of Pediatric Rheumatologist here in Idaho. They are only two of the 300,000 here in the USA, but they are mine.  Please help us and the other 300,000 children an families bring awareness to this debilitating disease.

Thank you so much for listening.

Sincerely,