Friday, January 6, 2012


I just realized I have not updated since August.  EEEEEEKKKK!!!!

So much has happened in such a short amount of time.  We found out Abbie was allergic to Humira and we have switched her to Remicade.  We were originally told that we would do her dosing at 2 weeks 4 weeks and 8 weeks...  well, we did.  The first 3 doses just like that but after the first 4 weeks she was begging for her infusion.  We have stayed at every 4 weeks since September which means that we drive to Utah, 376 miles one way to our infusions.

I have to say this is one reason I want to be an advocate for Juvenile Arthritis awareness...  Idaho is one of several states in the U.S. that does NOT have a Pediatric Rheumatologist.  The next closest Pediatric Rheumatologist is in Portland, OR, and then Seattle, WA.

This week I'm a little reminiscent because one week from today will be the day we started on our journey of full fledged treatment of JIA.  Abbie has failed 2 TNF Blockers  and we are now waiting to see how her last MRI of her jaw looks to see if she has failed the 3rd or not.  January 13th 2011 changed the way I will look at Arthritis forever.  I can hardly put into words the emotions I feel.  Some times it is overwhelming but I have gained the most amazing support from friends all around the world.  I am truly grateful for the education and compassion I myself have learned because of my kids and their diagnoses.  For more information on pediatric Juvenile Arthritis go to


  1. Hi, I volunteer with IAAM (International Autoimmune Arthritis Movement~formerly the Buckle-Me-Up Movement!). What we've be working on in February and March has been reaching out to people on our JA blogger list and asking if we can post them as a resource on the JA page. To start, could we have contact info from you to add to our blogger list for our records. And if you give us the info, then we will also post your blog as a resource for others on the JA page. Please email me at and let me know.
    Thanks, Dana M

    1. We also invite you to participate in in World Autoimmune Arthritis Day on May 20th 2012!

      World Autoimmune Arthritis Day
      Join us for a 47 hour, Global Online Virtual Convention aimed to bring global awareness while learning more about your disease and ways to manage it best!